compiled
by KotaPress
After my
son was stillborn, I began
meeting more and more stillbirth
moms who had also been
diagnosed with PCOS - Poly
Cystic Ovarian Syndrome.
Many had no or very few
symptoms prior to pregnancy.
But after the stillbirths,
the symptoms had exploded
for many of us. One of
the symptoms, unfortunately,
is infertility. Some of
us choose to simply deal
with the PCOS. Some of
us deal with it in order
to get pregnant again.
Most of us on constantly
on the hunt for new information
about this syndrome.
My
mom recently emailed
about a tv ad she saw for
a PCOS study being done
a Magee Women's Hospital
in Pittsburgh, Pennsylvania.
She encouraged me to try
and contact them
about the study as she
was unable to get all the
details when the ad played.
I sent a note off to Dolly
Gibala at the hospital
asking for more information.
She fowarded my note to
Kathleen Laychak who answered
as follows:
From:
Laychak, Kathleen
Sent: Wednesday, July 21, 2004
9:11 AM
Subject: RE: PCOS study??
My name is Katy Laychak,
and I am the research
coordinator for this trial
[at Magee Women's]. It is for
women who have PCOS and would
like to be pregnant. It is
sponsored by NIH, National
Institutes of Health and is
being done is approx. 10 sites
across the country. It is a
30 week or 6 cycle trial involving
3 different medication
arms - clomid. metformin
and clomid/meformin combination.
It involves weekly blood
work, so yes, you do
need to live within driving
range of one of the centers.
If you search PPCOS on
line you will find additional
information. All the
different sites are listed...My
phone number is: 412-641-1483.
I am generally in my office
from 7:30 - 4:30 each
day. Thanks so much for your
interest.
Since
I live on the West Coast,
it isn't at all practical
for me to participate in
the study back in Pittsburgh
-- besides the fact that
I'm interested in dealing
with the PCOS, but not
necessarily interested
in getting preggers again.
But I did follow up on
Katy's advice to do some
Google searching to gather
more information for our
readers who may be near
the various NIH sponsored
sites and interested in
the focus of the study.
So here's the main site
as far as I can tell --
they have details about
the study, a map of locations,
and contact information
available there. If you
are interested, check it
out: http://rmn.dcri.duke.edu
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